| Title | Author | Keywords | Year of Publication | DOI | Type of Output |
|---|---|---|---|---|---|
| School-recorded special educational needs provision in children with major congenital anomalies: a linked administrative records study of births in England, 2003-2013 | Peppa, M., Lewis, K. M., De Stavola, B., Hardelid, P., Gilbert, R. and on behalf of the HOPE study | birth defects, cohort study, congenital abnormalities, ECHILD, special educational needs | 2025 | https://doi.org/10.23889/ijpds.v10i1.2519 | Journal Article |
| Cumulative incidence of chronic health conditions recorded in hospital inpatient admissions from birth to age 16 in England | Matthew A Jay, Lauren Herlitz, Jessica Deighton, Ruth Gilbert, Ruth Blackburn | Chronic health conditions, administrative data, data linkage, population spine, population denominator, cumulative incidence | 2024 | https://doi.org/10.1093/ije/dyae138 | Journal Article |
| Data Resource Profile: ECHILD only-children and siblings (ECHILD-oCSib): a national cohort of linked health, education and social care data on mothers and children in England | Qi Feng, Georgina Ireland, Ruth Gilbert, Katie Harron | only child, siblings, data linkage, hospital records, Hospital Episode Statistics, National Pupil Database | 2024 | https://doi.org/10.23889/ijpds.v8i6.2392 | Journal Article |
| Data Resource Profile: A national linked mother-baby cohort of health, education and social care data in England (ECHILD-MB) | Qi Feng, Georgina Ireland, Ruth Gilbert, Katie Harron | Mother-baby cohort, Hospital Episode Statistics, National Pupil Database, data linkage, intergenerational effects | 2024 | https://doi.org/10.1093/ije/dyae065 | Journal Article |
| Number and timing of primary cleft lip and palate repair surgeries in England: whole nation study of electronic health records before and during the COVID-19 pandemic | David Etoori, Min Hae Park, Ruth Marion Blackburn, Kate J Fitzsimons, Sophie Butterworth, Jibby Medina, Louise Mc Grath-Lone, Craig Russell, Jan van der Meulen | Cleft lip and palate, paediatric surgery, congenital anomalies, hospital episode statistics (HES), Speech outcomes | 2023 | https://doi.org/10.1136/bmjopen-2023-071973 | Journal Article |
| Data Resource Profile: The Education and Child Health Insights from Linked Data (ECHILD) Database | Louise Mc Grath-Lone , Nicolas Libuy, Katie Harron | Child health, adolescent health, education, administrative data, linked data, social care | 2022 | https://doi.org/10.1093/ije/dyab149 | Journal Article |
| Changes in adolescents' planned hospital care during the COVID-19 pandemic: analysis of linked administrative data | Louise Mc Grath-Lone, David Etoori, Ruth Gilbert, Katie L Harron, Jenny Woodman, Ruth Blackburn | Covid 19 pandemic, Administrative data, data linkage, Hospital records, Hospital Episode Statistics (HES) | 2022 | https://doi.org/10.1136/archdischild-2021-323616 | Journal Article |
| Gestational age at birth, chronic conditions and school outcomes: a population-based data linkage study of children born in England | Nicolas Libuy, Ruth Gilbert, Louise Mc Grath-Lone | Gestational age, academic performance, special educational needs, chronic conditions, England, whole-population cohort | 2023 | https://doi.org/10.1093/ije/dyac105 | Journal Article |
| What makes administrative data research-ready? A systematic review and thematic analysis of published literature | Louise Mc Grath-Lone, Matthew A. Jay, Ruth Blackburn | administrative data, research-ready, systematic review, thematic analysis | 2022 | https://doi.org/10.23889/ijpds.v7i1.1718 | Journal Article |
| COVID-19-related school closures and patterns of hospital admissions with stress-related presentations in secondary school-aged adolescents: weekly time series | Ruth M Blackburn, Jacqueline, Phillips Owen, Johnny Downs, Ruth Gilbert | Epidemiologychild and adolescent mental healthstress-related presentationsmental health in schoolsCOVID-19 pandemic | 2022 | https://doi.org/10.1192/bjp.2022.113 | Journal Article |
| Hospital admissions for stress-related presentations among school-aged adolescents during term time versus holidays in England: weekly time series and retrospective cross-sectional analysis | Ruth Blackburn, Omotomilola Ajetunmobi, Louise Mc Grath-Lone, etal | Adolescents; stress; administrative data; mental health; schoo | 2021 | https://doi.org/10.1192/bjo.2021.1058 | Journal Article |
| Linking education and hospital data in England: linkage process and quality | Nicolas Libuy, Katie Harron, Ruth Gilbert, etal | Record linkage, linkage error, bias, hospital records, educational records, data linkage, administrative data | 2021 | https://doi.org/10.23889/ijpds.v6i1.1671 | Journal Article |
| Educational outcomes of children with major congenital anomalies: Study protocol for a population-based cohort study using linked hospital and education data from England | Joachim Tan, Ayana Cant, Kate Lewis, Vincent Nguyen, Ania Zylbersztejn, Laura Gimeno, Pia Hardelid, Bianca De Stavola, Katie Harron, Ruth Gilbert | Congenital abnormalities, birth defects, educational achievement, cohort study, school-aged children | 2024 | https://doi.org/10.3310/nihropenres.13750.1 | Protocol |
| Planned and unplanned hospital admissions and health-related school absence rates in children with neurodisability: Protocol for a population-based study using linked education and hospital data from England | Gimeno L, Zylbersztejn A, Cant A, Harron K, Gilbert R | neurodisability, school absence, hospital admissions, electronic health records, linked data | 2024 | https://doi.org/10.3310/nihropenres.13558.1 | Protocol |
| Primary school attainment outcomes in children with neurodisability: Protocol for a population-based cohort study using linked education and hospital data from England | Cant A, Zylbersztejn A, Gimeno L, Gilbert R, Harron K | neurodisability, educational attainment, linked data, primary school | 2024 | https://doi.org/10.3310/nihropenres.13588.1 | Protocol |
| Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme | Zylbersztejn A, Lewis K, Nguyen V, et al | SEN, mixed methods, children health, education | 2023 | https://doi.org/10.1136/bmjopen-2023-072531 | Protocol |
| Local authority variation in primary school-recorded special educational needs provision among children with major congenital anomalies: A research protocol | Lewis K, Nguyen V, Zylbersztejn A et al. | administrative data; children; primary school; special education; birth defects; ECHILD database | 2023 | https://doi.org/10.3310/nihropenres.13466.1 | Protocol |
| Early special educational needs provision and its impact on unplanned hospital utilisation and school absences in children with isolated cleft lip and/or palate: a demonstration target trial emulation study protocol using ECHILD | Nguyen V, Lewis KM, Gilbert R et al. | Special Educational Needs, Trial Emulation, Confounding-by-indication, Cleft Lip and/or Palate | 2024 | https://doi.org/10.3310/nihropenres.13472.1 | Protocol |
| Establishing risk factors and outcomes for congenital hypothyroidism with gland in situ using population-based data linkage methods: study protocol. | Ruiz Nishiki M, Cabecinha M, Knowles R, Peters C, Aitkenhead H, Ifederu A, Schoenmakers N, Sebire NJ, Walker E, Hardelid P. | epidemiology, ethics, neonatology | 2022 | https://doi.org/10.1136/bmjpo-2021-001341 | Protocol |
| Cumulative incidence of chronic health conditions recorded in hospital admissions from birth to age 16 in England: a cohort study using linked hospital and education administrative data | Matthew Jay, Lauren Herlitz, Jessica Deighton, Ruth Gilbert, Ruth Blackburn | Chronic health conditions, hospital admissions, administrative data, linked data | 2024 | https://doi.org/10.23889/ijpds.v9i5.2485 | Conference Abstract |
| Screening for psychological distress in childhood and mental health-related hospital attendance among young adults | Gergo Baranyi, Katie Harron, Nasir Rajah, Emla Fitzsimons | Psychological distress, mental health, hospital attendance, HES records, Adminstrative data, linked data | 2024 | https://doi.org/10.23889/ijpds.v9i5.2513 | Conference Abstract |
| Health and education needs of primary school children with Down Syndrome in England: What can we learn from linked administrative data? | Julia Shumway, Ruth Gilbert, Bianca De Stavola, Ania Zylbersztejn | Down sydrome, administrative data, linked data, primary school education, children, health | 2024 | https://doi.org/10.23889/ijpds.v9i5.2695 | Conference Abstract |
| 10 year risk of death in adolescents with learning disability or autism in England: a national cohort study using linked health and education data from ECHILD | Ania Zylbersztejn, Isobel Ward, Katie Harron, Ruth Gilbert | learning disability, autism, linked data, health, education, adolescents, risk of death | 2024 | https://doi.org/10.23889/ijpds.v9i5.2555 | Conference Abstract |
| Hospital admissions among adolescents in out-of-home care or special educational needs in England: insights from the ECHILD database of linked health, education and social care records | Ruth Blackburn, Ania Zylbersztejn, Dora Kokosi, Michelle Heys, Ruth Gilbert | hospital admissions, out of home care, special edicational needs, linked data, social care, adolescents | 2024 | https://doi.org/10.23889/ijpds.v9i5.2642 | Conference Abstract |
| Creating an intergenerational cohort of mothers and their children using administrative data from health, education and social care in England (ECHILD) | Q Feng, Ruth Gilbert, Georgina Ireland, Katie Harron | mothers, children, linked mothers and children, administrative data, linked data | 2024 | https://doi.org/10.23889/ijpds.v9i5.2498 | Conference Abstract |
| Mortality in adolescents receiving special education and social care provision: A population-level cohort study in England | Isobel Ward, Matthew Jay, Joseph Ward, Ruth Gilbert, Ania Zylbersztejn | mortality, adolescents, special educational needs, social care, population,linked data, administrative data | 2024 | https://doi.org/10.23889/ijpds.v9i5.2684 | Conference Abstract |
| Implementing Transparency Standards: The ECHILD Project in Action | Katie Harron, Milagros Ruiz Nishiki, ECHILD team | transparency standards, Child Health, Data Linkage, Health, Education, Data Access Transparency, Data Access Process | 2024 | https://doi.org/10.23889/ijpds.v9i3.2456 | Conference Abstract |
| Primary-school recorded special educational needs in children born with major congenital anomalies in England: A population-based study using the Education and Child Health Insights from Linked Data database | Lewis, K., Peppa, M., De Stavola, Pia Hardelid, Ruth Gilbert | special educational needs, congenital anomalies, linked data, administrative data, school, education | 2023 | https://doi.org/10.23889/ijpds.v8i2.2340 | Conference Abstract |
| Which people are most affected by changes to data linkage methodology? An exploration of patient, organisational and spatiotemporal characteristics in administrative hospital data in England | Tony Stone, Katie Harron | data linkage, methodology, hospital data | 2023 | https://doi.org/10.23889/ijpds.v8i2.2235 | Conference Abstract |
| Educational outcomes in children with chronic liver disease in England are inferior to peers: evidence from 5 million children | Libuy N, Harron K, Samyn M. | educational outcomes, chronic liver disease, linked data | 2023 | https://doi.org/10.1136/archdischild-2023-rcpch.357 | Conference Abstract |
| Quantifying emergency hospital admissions with self-harm in secondary school pupils in England: whole nation study of linked data from health and education | Blackburn, R., Jacquie, P. O., Downs, J. & Gilbert, R. | Self-harm, Adolescent mental health, School-based epidemiology, Hospital admissions, Emergency care, Peer influence, School clusters, ECHILD database, Linked administrative data, Special educational needs (SEN, SEND), Ethnic disparities, Socioeconomic deprivation, Multilevel modelling, Gender differences, Public health surveillance, England, Secondary schools, Mental health interventions, Educational data linkage, Youth suicide prevention | 2022 | https://doi.org/10.1136/bmjpo-2022-RCPCH.7 | Conference Abstract |
| The education and child health insights from linked data (ECHILD) database: a newly linked, de-identified health-education data resource | Louise Mc Grath-Lone, Nicolás Libuy, Ruth Blackburn, Katie Harron, David Etoori, Ruth Gilbert | linked data, database, education, health, children, administrative data | 2021 | https://doi.org/10.1136/archdischild-2021-rcpch.284 | Conference Abstract |
| Reductions in hospital care among clinically vulnerable children aged 0–4 years during the COVID-19 pandemic | David Etoori, Katie Harron, Louise Mc Grath-Lone, Maximiliane L Verfürden, Ruth Gilbert, Ruth Blackburn | Clinically vulnerable children, COVID-19 pandemic, Hospital care reductions, Pediatric healthcare, Chronic health conditions, Preterm birth, Low birth weight, Outpatient attendances, Planned hospital admissions, Unplanned hospital admissions, Birth cohort study, NHS hospitals, England, Healthcare inequalities, Ethnic disparities, Deprivation, Virtual outpatient care, Healthcare access, Child health services, Pandemic impact, Pediatric hospital utilisation, Health equity, Administrative health data, Health service disruption, COVID-19 and children, Vulnerable populations | 2021 | https://doi.org/10.1136/archdischild-2021-323681 | Journal |
| SEN support from the start of school and its impact on unplanned hospital utilisation in children with cleft lip and palate: a demonstration target trial emulation protocol using ECHILD | Vincent Grigori Nguyen, Anna Zylbergsztejn, Katie Harron, Tamsin Ford, Kristine Black-Hawkins, Kate Boddy, Johnny Downs, Martin Doyle, Matthew Lilliman, Jacob Matthews, Stuart Logan, Jugnoo Rahi, Ruth Gilbert, Lorraine Dearden, Bianca De Stavola | Special Educational Needs, SEN provision, Cleft lip and palate, Unplanned hospital admissions, Educational support, Target trial emulation, Observational data, Causal inference, ECHILD dataset, Linked administrative data, Hospital Episode Statistics, HES, National Pupil Database, NPD, Longitudinal | 2022 | https://doi.org/10.1101/2022.04.01.22273280 | Pre-Print |
| Timing of surgery for primary repair of cleft lip and/or palate on educational attainment at age 7 years: a birth cohort study using linked administrative data for England | David Etoori, Min Hae Park, Kate Fitzsimons, Sophie Butterworth, Jibby Medina, Jan Van Der Meulen, Craig Russell, Ruth Blackburn | Cleft lip, Cleft palate, Orofacial clefts, Primary cleft surgery, Surgery timing, Educational outcomes, Key Stage 1, KS1, Reading scores, Maths scores, Child development, Congenital anomalies, Birth cohort study, Linked health and education data, Hospital Episode Statistics, HES, Early intervention, Academic attainment, NHS, England, Palate repair, Lip repair, Surgical timing, Pediatric surgery, | 2025 | https://doi.org/10.1101/2025.02.28.25323080 | Pre-Print |
| Involving and engaging children, young people and carers in the ECHILD project | Erin Walker, Ruth Gilbert, Ruth Blackburn | PPIE, research, public, engagement, education, health, administrative data, linked data, | 2021 | https://doi.org/10.1136/archdischild-2021-rcpch.750 | Conference Abstract |
| Health and education outcomes from adolescence to adulthood for young people with neurodisability and their peers: protocol for a population-based cohort study using linked hospital and education data from England | Macaulay L, Saxton J, Ford T, Logan S, Harron K, Gilbert R, Zylbersztejn A. | Adolescents; Developmental neurology & neurodisability; EPIDEMIOLOGY; Health Equity; PUBLIC HEALTH; STATISTICS & RESEARCH METHODS. | 2025 | https://doi.org/10.1136/bmjopen-2025-100276 | Protocol |
| Open science and phenotyping in UK administrative health, education and social care data: the ECHILD phenotype code list repository | Jay, M. A., Lewis, K., Shi, D., Langella, R., Stone, T., Ní Chobhthaigh, S., Zylbersztejn, A., Blackburn, R. and Harron, K. | ECHILD, Open science, Phenotyping, Repository | 2025 | https://doi.org/10.23889/ijpds.v10i2.2943 | Journal Article |
| Sociodemographic variation in the timing of recorded special educational needs provision in primary school in England amongst children with cerebral palsy: a staggered cohort study using the ECHILD database | Kate M Lewis, Vincent G Nguyen, Ania Zylbersztejn, Sorcha Ni Chobhthaigh, Lorraine Dearden, Bianca De Stavola | administrative data; cerebral palsy; children; primary school; special education; ECHILD database; inequalities | 2024 | https://doi.org/10.3310/nihropenres.13618.1 | Protocol |
| The impact of early special educational needs provision on later hospital admissions, school absence and education attainment: A target trial emulation study of children with isolated cleft lip and/or palate | V Nguyen, K Lewis, R Gilbert, B De Stavola, L Dearden | Special educational needs, SEN, Clef lip, Cleft palate, School absences, HES, Hospital admissions, target trial emulation, school attainment | 2025 | https://doi.org/10.1371/journal.pone.0327720 | Journal Article |
| MAMAH Study, which is working to better understand maternity experiences and outcomes for underserved migrant women in the UK here on LinkedIn. | Kerrie Stevenson | MAMAH study, maternity, migration, migrant women, women health, education outcomes | 2025 | Conference Abstract | |
| Academic selection, relative achievement and hospital contacts due to mental health and adjustment issues in England | John Jerrim | Educational attainment, hospital admissions, HES, ECHILD, Mental health | 2025 | https://johnjerrim.com/wp-content/uploads/2025/01/working_paper_selective_areas_v2.pdf | Pre-Print |
| Chronic health conditions and school absence, exclusions, and non-enrolment: a cohort study using the Education and Child Health Insights from Linked Data database | Matthew Jay, Ania Zylbersztejn, Lauren Herlitz, Jessica Deighton, Ruth Gilbert, and Ruth Blackburn | Chronic health conditions, school absence, exclusions, non-enrolment, cohort study, admin data, linked data | 2025 | https://doi.org/10.1093/pubmed/fdaf064 | Journal Article |
| Phenotyping Neurodisability in Hospital Records in England: A National Birth Cohort Using Linked Administrative Data | Ania Zylbersztejn, Philippa Rees, Rashmi D'Souza, Stuart Logan, Ayana Cant, Laura Gimeno, Vincent Nguyen, Jugnoo Rahi, Ruth Gilbert, Katie Harron, on behalf of HOPE Study | administrative data, data linkage, electronic health records, neurodisability, special educational needs, SEN, SEND | 2025 | https://doi.org/10.1111/ppe.70052 | Journal Article |
| Is there evidence of inequality in the provision, level, and timing of SEND provision in English primary schools? | Bianca L De Stavola, Vincent G. Nguyen, Kate Lewis, Andrea Aparicio Castro, Lorraine Dearden, Ruth Gilbert, on behalf of the HOPE study team | ECHILD database; primary education; school governance; special education needs, disability, SEN, SEND, HOPE | 2025 | https://doi.org/10.1101/2025.08.27.25334554 | Pre-Print |
| Hospital admissions amongst high-achieving adolescents from disadvantaged socio-economic backgrounds | John Jerrim | High-achieving, disadvantaged children, risky health behaviours, mental health, social mobility | 2025 | https://doi.org/10.1080/03054985.2025.2534137 | Journal Article |
| Early special educational needs provision and health and educational outcomes during primary school in children with cerebral palsy | Vincent Nguyen, Kate M. Lewis, Ruth Gilbert, Bianca De Stavola, Lorraine Dearden | Special Educational Needs, Target Trial Emulation, Confounding, cerebral palsy, Propensity Score, hospital admissions, KS1, KS2, Inverse Probability Weighting , g-computation, SEN, SEND, primary school | 2025 | https://doi.org/10.3310/nihropenres.14015.1 | Pre-Print |
| Making using administrative data easier: How To Guides and the Phenotype Code List Repository for ECHILD | Matthew Jay, Kate Lewis, Difei Shi, Rebecca Langella, Tony Stone, Sorcha Ní Chobhthaigh , Ania Zylbersztejn, Ruth Blackburn, Katie Harron | 2025 | https://doi.org/10.23889/ijpds.v10i3.3037 | Conference Abstract | |
| Linking maternal mental health and health care utilisation to child educational outcomes: Challenges and opportunities of ECHILD | Amanda Mason-Jones | 2025 | https://doi.org/10.23889/ijpds.v10i3.3043 | Conference Abstract | |
| Maternal contact with social care services and their children’s health and educational outcomes: a data linkage study using mother-baby linkage in ECHILD | Difei Shi, Matthew Jay, Katie Harron | 2025 | https://doi.org/10.23889/ijpds.v10i3.3058 | Conference Abstract | |
| Mortality in adolescents with and without neurodisability in England: a national cohort study using linked health and education data from ECHILD | Louise Macaulay, Isobel Ward, Jennifer Saxton, Tamsin Ford, Stuart Logan, Katie Harron, Ruth Gilbert, Ania Zylbersztejn | 2025 | https://doi.org/10.23889/ijpds.v10i4.3070 | Conference Abstract | |
| The impact of early special educational needs provision on unauthorised absences during primary education for children with Cerebral Palsy | Vincent Nguyen, Kate Lewis, Andrea Aparicio, Ruth Gilbert, Lorraine Dearden, Bianca De Stavola | 2025 | https://doi.org/10.23889/ijpds.v10i4.3074 | Conference Abstract | |
| Hospital contacts of children involved with children’s social care services in England: a data linkage study using ECHILD. | Eliazar Luna, Katie Harron, Grace Bailey, Lisa Holmes, Dougal Hargreaves, Jenny Woodman, Kathryn Tranter, Lucy Griffiths, Karen Broadhurst | 2025 | https://doi.org/10.23889/ijpds.v10i4.3082 | Conference Abstract | |
| Working with Members of the Public to Co-Create Directed Acyclic Graphs (DAGs) in ECHILD (Education and Child Health Insights from Linked Data): Harnessing the Power of Co-Production in Population Data Science | Kemi Ogunlana, Robert Aldridge, Fiona Stevenson, Katie Harron, Vincent Nguyen, Kerrie Stevenson | 2025 | https://doi.org/10.23889/ijpds.v10i4.3086 | Conference Abstract | |
| Referrals to mental health services among adolescents in England by social strata: National cohort study | Kate Lewis, Helen Dale, Dan Lewer, Ruth Blackburn | 2025 | https://doi.org/10.23889/ijpds.v10i4.3093 | Conference Abstract | |
| Evaluating the Impact of Underdiagnosis for Children Receiving Special Educational Needs (SEN) support for Autism in 2016-2022: an analysis of Education and Child Health Insights from Linked Data (ECHILD) | Xingna Zhang | 2025 | https://doi.org/10.23889/ijpds.v10i4.3137 | Conference Abstract | |
| Pathways through support services in neurodivergent children and young people who develop mental health conditions: preliminary findings and challenges using administrative data from the ECHILD project | Simona Skripkauskaite | 2025 | https://doi.org/10.23889/ijpds.v10i4.3162 | Conference Abstract | |
| Primary school attainment outcomes in children with neurodisability: A population-based cohort study using linked education and health data from England. | Ayana Cant, Ania Zylbersztejn, Laura Gimeno, Vincent Nguyen, Joachim Tan, Ruth Gilbert, Katie Harron | 2025 | https://doi.org/10.23889/ijpds.v10i4.3167 | Conference Abstract | |
| Educational outcomes of children with major congenital anomalies in England: a population-based cohort study using linked hospital and education data from the ECHILD database | Joachim Tan, Ayana Cant, Kate Lewis, Vincent Nguyen, Laura Gimeno, Ania Zylbersztejn, Pia Hardelid, Katie Harron, Ruth Gilbert | 2025 | https://doi.org/10.23889/ijpds.v10i4.3239 | Conference Abstract | |
| Linkage between national social care and education data for unaccompanied asylum-seeking children in England, 2005-2021 | Rebecca Langella, Kate Lewis, Pia Hardelid | 2025 | https://doi.org/10.23889/ijpds.v10i4.3240 | Conference Abstract | |
| What is the effect of the two-child limit on children’s school readiness? | Sarah Cattan, Tom Waters, Tom Wernham | Education and skills Employment and income Poverty, inequality and social mobility Benefits Childcare and early years Early childhood development Education Family Poverty Schools Social mobility Working age benefits | 2025 | https://doi.org/10.1920/re.ifs.2025.0028 | Pre-Print |
| Concentration of Hospital Days Among Children with Additional Health, Social Care or Education Needs: Longitudinal Birth Cohort Analysis of All Children in England | German Pulido, Yiu-Shing Lau, Matthew Sutton, and Ruth Gilbert | SEN, Hospital days, additional health, social care, SEND, chronic health conditions, birth cohort, longitudinal | 2025 | http://dx.doi.org/10.2139/ssrn.5397511 | Pre-Print |
| Impact of special educational needs provision on hospital utilisation, school attainment and absences for children in English primary schools stratified by gestational age at birth: A target trial emulation study protocol | Nguyen V, Lewis KM, Gilbert R et al. | Target Trial Emulation, protocol, Primary schools, SEN, SEND, Hospitals, school attainment, absences, linked data | 2023 | https://doi.org/10.3310/nihropenres.13471.1 | Protocol |
| Educational outcomes for children and young people with cancer: study protocol for a population-based cohort study using linked education and hospital data from England | Nath S, Stone T, Lam J, et al | Cancer, children, population, linked data, Young people, educational outcomes, hospital data, | 2025 | https://doi.org/10.1136/bmjopen-2025-109410 | Protocol |
| Childhood outcomes in children with Hirschsprung disease: a populationbased data linkage study in England | Katie L Harron,Benjamin S Jevans ,Benjamin S R Allin, Joseph R Davidson, Anestis Tsakiridis, Peter W Andrews,Paolo De Coppi,Conor J McCann | Hirschsprung disease, data linkage, congenital disease, hospital admissions, SEN, SEND, population data, comorbidities, mortality | 2026 | https://doi.org/10.1136/flgastro-2025-103478 | Journal Article |
| Mortality in Children and Young People Receiving Special Education or Social Care Provision: A Whole Population Cohort Study in England | Isobel L. Ward, Louise Macaulay, Matthew A. Jay, Joseph Ward, Ruth Gilbert, Ania Zylbersztejn | SEND, SEN, CSC, Children social care, young adults, linked data, Cox Proportional Hazards models | 2025 | https://dx.doi.org/10.2139/ssrn.5898754 | Pre-Print |
| Hospital admissions and school absences of primary school children with and without neurodisability | Laura Gimeno, Ania Zylbersztejn, Ayana Cant, Ruth Gilbert, Katie Harron, on behalf of the HOPE Study Group | Neurodisability, primary school, absences, hospital admissions, linked data | 2025 | https://doi.org/10.1111/dmcn.70128 | Journal Article |
| Using the Maternity Services Dataset for Research: Opportunities and Challenges | Catherine Stewart, Jennifer Hall, Katie Harron | Maternity Services data, linked data, MSDS, NHS datasets | 2025 | https://doi.org/10.23889/ijpds.v10i4.3098 | Conference Abstract |
| Local authority variation in school-recorded special educational needs and disability provision in Year 1 among children born in England, 2003–13 | Kate M Lewis , Vincent G Nguyen , Ruth Gilbert , Bianca De Stavola , Lorraine Dearden on behalf of the HOPE Study Team | child, gestational age, income, knowledge acquisition, disability, care plan, angiosarcoma associated with lymphedema, lung allocation score, ligamentous articular strain technique | 2026 | https://doi.org/10.1093/eurpub/ckaf116 | Journal Article |
| Evaluation of special educational needs and disability provision in English primary schools using administrative health and education data in the ECHILD database | Ruth Gilbert, Jenny Saxton, Ayana Cant, Kate Lewis, Vincent Nguyen, Hayley Gains, Ania Zylbersztejn, Joachim Tan, Laura Gimeno, Jacob Matthews, Isaac Winterburn, Jugnoo Rahi, Johnny Downs, Stuart Logan, Will Farr, Lorraine Dearden, Katie Harron, Tamsin Ford, and Bianca L De Stavola on behalf of the HOPE study team | special education needs, disability, administrative health data, linked administrative data, causal inference | 2026 | https://doi.org/10.23889/ijpds.v10i2.3331 | Journal Article |
| Mortality risk by age 22 in young people with neurodisability in England: a national cohort study using linked health and education data | Louise Macaulay, Jennifer Saxton, Tamsin Ford, Stuart Logan, Katie Harron, Ruth Gilbert, Ania Zylbersztejn | mortality, linked data, adolescents, neurodisability, mortality risk, education records, hospital records, Kaplan-Meier curves, Cox proportional hazards | 2026 | https://doi.org/10.64898/2026.01.12.26343912 | Pre-Print |
| Educational Attainment of Children With Major Congenital Anomalies During Primary School in England: A Population Cohort Study | Joachim Tan, Ayana Cant, Kate Lewis, Vincent Nguyen, Laura Gimeno, Ania Zylbersztejn, Pia Hardelid, Joan Morris, Bianca De Stavola, Katie Harron, Ruth Gilbert, on behalf of the HOPE Study Team | birth defects, cohort study, congenital abnormalities, educational attainment, school-aged children | 2026 | https://doi.org/10.1111/ppe.70122 | Journal Article |
| Surviving Childhood Cancer: The Long-Term Physical and Psychological Effects of Treatment in the UK - Is enough being done? | Imogen Smith | special education needs, disability, administrative health data, linked administrative data, causal inference | 2026 | https://www.echild.ac.uk/s/Imogen-Smith-EPQ-Finished-Document.pdf | Report |
| Educational attainment among primary school children with neurodisability: a population-based cohort study using linked education and health data from England | Cant A, Zylbersztejn A, Gimeno L, et al | Primary School; neurodisability, Hospital, attainment, administrative, linked data | 2026 | https://doi.org/10.1136/archdischild-2025-329224 | Journal Article |
| Hospital admissions among adolescents with local authority care experience or special educational needs in England: a population-based cohort study using linked administrative data from health, education and social care services | Blackburn RM, Kokosi T, Heys M, et al. | SEN, hospital admissions, adolescents, local authority, social care | 2026 | https://doi.org/10.1136/bmjph-2025-003106 | Journal Article |
| Data Resource Profile: Maternity Services Dataset (MSDS) | Stewart, C., Hall, J. and Harron, K | Maternity Services Dataset, Administrative Data, Maternity Services, NHS | 2026 | https://doi.org/10.23889/ijpds.v8i6.3007 | Journal Article |
| Healthcare utilisation among children in contact with social services in England: An interrupted time series using ECHILD | Eliazar Luna, Lucy J. Griffiths, Karen Broadhurst OBE, et al | Children's social care Healthcare utilisation Interrupted time series Hospital contacts Administrative data | 2026 | https://doi.org/10.1016/j.chiabu.2026.107916 | Journal Article |
| Disparities in adolescent mental health-related National Health Service presentations in England: secondary school cohort study | Kate Lewis, Helen Dale, Dan Lewer, Johnny Downs, Ruth Blackburn | Adolescent mental health; health service use; social inequalities; ethnic disparities; ECHILD dataset | 2025 | https://doi.org/10.1101/2025.11.03.25338372 | Pre-Print |
| Using the ECHILD Database to Explore Educational and Health Outcomes of Unaccompanied Asylum-Seeking Children living in England (2005 – 2021) | Rebecca Langella, Pia Hardelid, Kate Marie Lewis | Unaccompanied Asylum-Seeking Children (UASC); asylum-seeking children; educational outcomes; health outcomes; data linkage; administrative data; children's social care; local authority care; National Pupil Database; NHS data; England | 2026 | https://doi.org/10.64898/2026.03.04.26347576 | Pre-Print |
| Racial-Ethnic and Gender Inequalities in Mental Health-related SEND and Hospital Contacts among Children and Adolescents: A Population-based Linked Data Cohort in England | Sorcha Ní Chobhthaigh, Camille Cox, Twyla Greenway-Bailey, Josephine Musanu, Mel Green, Cyra Neave, Amie Buhari, Mina Mawi, Praveetha Patalay, Rochelle Burgess, Delanjathan Devakumar, Matthew Jay | Administrative data, Children and adolescents, Gender Inequality, Mental health, Race and ethnicity, Special Educational Needs and Disabilities (SEND), Linked data, Hospital admissions | 2026 | https://doi.org/10.31234/osf.io/nx365_v1 | Pre-Print |